Supporting carers in these exceptional times. Carers Week is 8th-14th June #carers #caring #family #wirralhospice #patientcare #makingcaringvisible #thankyou

‘Carers’ are the unpaid army of family and friends who spend many hours caring for and supporting people with physical and mental illness and disability, above and beyond the services that statutory, private and/or charitable health & social care organisations provide.

The week of 8th-14th June is national Carers Week, with a rallying call of ‘Making Caring Visible’, it’s designed to raise awareness of the estimated 6.5 million people who have unpaid caring responsibilities across the UK.

HeatherWirral Hospice St John’s spiritual care coordinator, Heather MacLeod (a little more about her later), reminded me of these lyrics, famously sung by Celine Dion*, to capture all we contemplate during national Carers Week.

You were my strength when I was weak
You were my voice when I couldn’t speak
You were my eyes when I couldn’t see
You saw the best there was in me
Lifted me up when I couldn’t reach
You gave me faith ’cause you believed
I’m everything I am
Because you love me

Perfect!

Carers will often class themselves as, just, a wife, husband, partner, son, daughter, grandparent or other family member or friend. Their care comes from a sense of duty and a deep well of love.

We see this, close up, every single day at Wirral Hospice St John’s.

Supporting and caring for people with life limiting illnesses is at the heart of everything we do and, in order to really know our patients, to extend the care and support we provide for them, we also offer services designed to help their carers, practically, spiritually and emotionally.

In normal times we’ll see and work with carers in all of our settings, Inpatients, Outpatients, Wellbeing Centre (day services) and Hospice at Home.

Physio Room (1)The current coronavirus crisis, calling on all of us to limit direct contact and minimise all but essential travel, has inevitably altered our ways of reaching out to carers.

Early on in the pandemic even visiting in our Inpatients ward was severely restricted. We managed ways to allow a small number of closest relatives to visit loved ones by supplying face masks and other personal protective equipment and reinforcing hand washing and safety recommendations.

For the wider family we’ve been providing patients with electronic equipment, such as IPads, if they don’t have their own, so that they can see each other and chat.

james george conference poster

Although some of the patient and family services team are working from home (hello Suzanne and Co) they are set up to continue working with patients and their carers. Where we can’t meet with carers, which is in most services just now, we’re staying in touch through telephone calls and other electronic communications.

On Friday of Carers Week we brought an afternoon tea for the visitors to our inpatients to remind them how we appreciate their massive contribution to the wellbeing of their loved ones. Scones with jam and cream and a nice drink… mmmmm!

Hospice Reception (1)Enquiries about welfare benefits and signposting to emotional and psychological support, including liaison with other local agencies, while agreeing plans of action are still being handled by our professional social workers, James and Ann-Marie.

Emily Fozard. Counsellor

Bereavement counselling, facilitated by the most accomplished listener, Stella, also continues in what are especially psychologically distressing circumstances for families. (A mention here for our other counsellor, Emily, (pictured left) who is on maternity leave with all of our best wishes).

Occupational therapists, physiotherapists and exercise co-ordinators, Sarah, Miriam, Elizabeth and Tracy (hello to Katy also on maternity leave) continue to work with patients and source instruction videos for those at home with their families and other carers.

Aroma Therapy (5)We’ve had to suspend our aromatherapy service, provided in normal times by the most soothing and empathetic practitioner, Lindsey, because of the necessary close proximity of delivery. We look forward to restoring the service as soon as we can.

And, of course, the wonderful Heather MacLeod, (our spiritual care coordinator,read a little bit more about Heather here), is available to provide her heartfelt comfort and advice to people who are sometimes struggling to find meaning or peace in what are really the most challenging time of their lives.

To all those families and other carers of our patients, your loved ones, please know Wirral Hospice St John’s is here for you.

Hospice Nurses (1)

Author: Billy Howard

*Words to ‘Because you loved me’ written by Diane Warren © Universal Music Publishing Group, BMG Rights Management 

All photos taken pre-COVID social distancing regulations.

 

 

The ‘V’ to ‘V’ of Valiant Volunteers at Wirral Hospice St John’s #volunteers #volunteering #VolunteersWeek #hospiceheroes #wirralhospice #caring #thankyou

Volunteers Week’ is an annual celebration of the massive contribution volunteers make to the multitude of organisations doing good works in all of our communities.

It’s run by the National Council for Voluntary Organisations (NCVO) which champions the voluntary sector and volunteering Wendie 2across the UK.

Our Wirral Hospice St John’s volunteers add so much to the life of the hospice but, as with many organisations, the coronavirus crisis has meant that the overwhelming majority of ours, some 500 of them, have been asked to stay at home until conditions prevail which will allow them to return to us.

To say we miss them is an understatement. We miss them like crazy!

Norma 2In normal times they are simply ‘here’ for us, at the hospice and in our Wirral Community. They’re part of the hospice family, They are, very often in fact, the ‘face’ of the hospice.

  • At main, outpatients and fundraising receptions they get people to where they want to go physically or by telephone. You’ll always be greeted with a friendly ‘hello, how can I help you’.
  • Inpatient ward general duties volunteers bring patients their drinks and often stop for a friendly chat or even help patients to share their stories. In our Wellbeing Centre volunteers will also make patients a nice drink, engage them in enriching and fun activities, facilitate group chats and be ‘on hand’ to alert our nursing staff if there’s a clinical need.liz 1
  • At fundraising events there are always volunteers to direct our supporters to help them sign in, to buy cakes and refreshments and to sell raffle and tombola tickets and the like.
  • Out in the community there are some 150 volunteers who work shifts in our charity shops or at the hospice gift shop (in the run up to Christmas) to advise customers, sort out donated stock, dress windows and serve. Others help our retail team by assessing and preparing those donated items which are potentially more valuable for ebay.
  • Bill Collins with CaroleOur volunteers come in all shapes and sizes, counting all the pennies that come in from collection boxes sited all over Wirral, helping in accounts, tending to the hospice gardens, collecting lottery cash and even holding their own community fundraising gatherings.

Every single one of them is an inspiration and they choose to volunteer for many and varied reasons. Some young people like to bolster their CV and gain work experience, others, often older, retired and greatly experienced, have lived in Wirral for years and know the work of the hospice and many have also had their own personal experience of the hospice’s caring services, through spouses, family and friends.

What is also true is that they’ve always got their hands in their pockets. Not in the ‘standing around’ sense, but in their generous support of the hospice with their own money. They’re incredible people.Ann D 2

From time to time we’ve shared stories from some of our vigorous, vibrant, valuable, versatile and (often) vivacious volunteers and we’ve linked you to some of them again to recall all of their great work.

If you click on their name below it will take you to their story so, in no particular order,

Wendie Darlington: Will do whatever’s needed for Wirral Hospice St John’s

Norma Edwards: Radiating positive energy in our Wellbeing Centre

Liz MunroOur gently effective fundraising volunteer, ‘par excellence’

Bill Collins: 30+ years an inpatients ward volunteer and regular ‘Light up a Life’ poet 

Ann Dermody: At the heart of the community at our Liscard charity shop

Susan Seed: Hospice friend, supporter and volunteer, since day one!

Niamh McEvoy: A young volunteer who ‘goes for it’ in our Moreton charity shop

Geoff ShannonA charismatic former telescope engineer in our Wellbeing Centre

Marianne Sunter: Retired chemistry teacher who reacts brilliantly to any situation

Colin MiddlebroughA volunteer we can all count on

Sue AWe hope you enjoy their stories as much as we value their, and all of our other vivid volunteers, precious time and excellent company.

Here’s a list of all the ‘V‘ words you can put in front of the word ‘volunteer’ to reinforce their priceless contributions.Colin

Valiant – showing courage and determination

Valuable – extremely useful and important, worth a great deal

Valorous – great courage in the face of danger

Va Va Voom – exciting, vigorous and attractive

Marianne 1

Varied – a number of different types or elements

Vaunted – praised or boasted about

Vaulting – prepared to jump over obstacles

Venerable – accorded a great deal of respect especially because of age, wisdom or character

Veracious – speaking or representing the truth

Versatile – able to adapt or be adapted to many functions or activities

Versed – experienced or skilled in: Knowledgeable about

Vivid – intensely bright, lively and vigorous

Niamh 3

Vigilant – keeping careful watch for dangers or difficulties

Vibrant – full of energy and life

VIP’s – very important people

Vigorous – strong, healthy and full of life

Geoff

Vim – Energy and enthusiasm

Virtuous – having or showing high moral standards

Vital – absolutely necessary, essential

Vivacious – attractively lively and animated

Vocal – expressing opinions freely (or loudly)

Vroom – the idea of speed or acceleration

It’s safe to say, Wirral Hospice St John’s VIP volunteers bring a veracious, vital value and variety, to all that we do. Verily!

Author: Billy Howard

The ‘Virtual’ Clatterbridge to John O’Groats Run with 15 old school pals of Calday Grange Grammar. #hospiceheroes #fundraising #running #wirralhospice #marathon #thankyou

Run - graphic -Text 1 (01)When former Calday Grange Grammar School friends Paul Parry and Dave Raven bumped into each other recently (they didn’t literally ‘bump’ as they were socially distancing of course) they had a chat about how they were staying fit during the coronavirus lock-down. (Paul is pictured above Dave from a Zoom meeting – the full picture of which is below*).

They concluded that it would be even more motivating if they had a target to achieve, maybe raise some sponsorship and wondered whether they could get a bunch of their old pals involved. They’re all in their mid-thirties now and have all stayed in touch since school.

So, after contacting their whole group via WhatsApp, and then arranging a Zoom call (all on the picture below*), they chose Wirral Hospice St John’s and Maggie’s Merseyside, both based at the Clatterbridge Health Park, to share the sponsorship monies they were hoping to raise. During the chat it emerged that a number of the chaps have family knowlege of the hospice and of the cancer support centre.

Some were willing to write a line or two about their own experiences and, with their permission, we have shared their recollections.

Dan Burns: “The hospice looked after my dad, Bob Burns, for respite at the back end of last year. They were absolutely amazing with the care and love they gave to him, and my mum. He passed away on the 14th of March, but he runs alongside me every step of this challenge. It’s so fresh for mum and I and we  would love as many people as possible to hear about it. I’m doing this in his memory and for what Wirral Hospice meant to him. x.”

Mike HellerMike Heller (Pictured left here, after a run): My dad, Steve Heller passed away at the hospice 8 years ago. I can remember that my dad really needed that special care as his illness progressed. Nothing was too much for them to do for him. I just remember how good and how nice they all were and how many volunteers they had supporting the nurses and doctors.”

Adam Simpson and Wife, Jo: “Jo’s friend Tricia was cared for at the hospice last year. It was clear to see what a caring special place St John’s Hospice is. Tricia also got so much support from Maggies Merseyside, which really helped her during her hardest times.”

Giles Pullen and Wife, Emily: “Emily’s Grandad, Bernie, spent the last few weeks of his life at Wirral Hospice St Johns, five years ago. I presumed it was a place where people just go to die when the hospital could do no more for you. It was the complete opposite. It was a cheery, happy place with lovely nurses, doctors and volunteers. He died there peacefully and was so content. That’s why it has a special place in our hearts.”

Martin Jones:My dad, Richard (they all referred to him as Dickie while he was in) went into the hospice on 8th April this year. He had just had the worst weekend health-wise. From going about his normal activities, his cancer had spread and he became bed-bound. The hospice stepped in and took control. They were fantastic. Communication throughout was great. They were clear about Dad’s illness but very sensitive to our feelings   Due to the coronavirus pandemic visiting had had to change, but they went out of their way to allow my mum, sister and I as much time as we needed with Dad. They supported our needs and gave the best possible care and relief for my dad. When he passed they were there for us explaining step-by step with thoughtful guidance. We can’t thank them enough. Every nurse was caring and fully up to date with his situation throughout the process. (Around the time my mum was also given the all clear from her bowel and liver cancer). They got to know know my parents really well and have continued support for my mum which has been great during this difficult time.”

And, right now, another runner, Trev Fisher, visits his dad, Roy,  who is with us at the hospice getting pain management treatment associated with his cancer condition. Roy is expecting to go home very soon and wanted everyone to know how proud he is of Trevor and all the lads for raising money for the hospice and Maggie’s. (Roy has been a keen athlete himself having chaired the Pensby Runners for years and having completed hundreds of runs and 13 full marathons in his time, including a sub 3 hour time!) Roy said,

Wirral Hospice St John’s has been a real boon for me. I’m so delighted that Trevor and the lads chose it as one of their charities. I also know of the great work Maggie’s does too. It’s so inspiring as I know that many events and challenges have had to be cancelled because of the current crisis, but people are still finding unique ways to support their favourite causes.

So the fifteen men are now completing a ‘virtual’ 7-day Clatterbridge to John O’Groats running challenge between them! It started on Monday 25th May and will run through until Sunday 31st May. They’re each tracking how far they can run in an hour each day, within the coronavirus guidelines, to get to the total distance of 810 kilometres. Between them they have to average 7.7 kms per day for 7 consecutive days (just under 5 miles a day each!)

Paul Parry (2)Paul Parry (pictured left here, following a run) owns a Heswall business, The Way Fitness, where he is a personal trainer and fitness instructor. His wife’s uncle, Sam Lavin, a fit and strong rugby man in his time was also cared for at Wirral Hospice St John’s for which he and their wider family wanted us to know they are eternally grateful.

Paul is himself, obviously, ‘ever ready’ for challenges but, whereas some of the friends are also members of Paul’s private gym, there are a couple who say they haven’t ‘run properly’ since school. Paul summarised the effort,

Dave and I started talking about getting the lads together for a challenge and we were thinking about maybe doing 100km between us. On the ‘lively’ Zoom call that followed this became much more ambitious and the idea of Clatterbridge to John O’Groats came to fruition. As we chatted it became clear we should raise funds for Wirral Hospice St John’s and Maggie’s as it was eye-opening the number of people who had a personal connection.

Martin Robinson. DubaiWe’re all completing our runs around various Wirral neighbourhoods, although one of the chaps, Martin Robinson (pictured right), lives in Dubai and, while we were all complaining that Monday was a searingly hot day to start the challenge, he reminded us that he was having to get up at 6am to do his hour as the temperature is hitting 38 degrees there just now.

Many pics of the sweating, and sometimes exhausted, lads are adorning social media as they complete their daily challenges and people are sending sponsorship monies to support their endeavour, hurtling them towards their £5,000 target.

There is a link at https://uk.virginmoneygiving.com/Team/TheLads2 if you would like to show your support.

It really is a welcome fundraiser for Wirral Hospice St John’s (and Maggie’s) right now as many of this year’s larger participation events are now cancelled. Charity finances will inevitably take a hit but, as usual, our Wirral Community have rallied around to help us to continue to provide our specialist care and support services.

And, not least, the lads from Calday Grange Grammar School, still friends after 20 odd years. To them we say, Sirs, you are you are certainly Gentlemen and Scholars and we thank you from the bottom of our hearts….

*The full 15 below are (from l-r)

Paul Parry, Dan Burns, Stu Gosling, Mike Heller, Mark Leyland,

Dave Raven, Matty Roberts, Adam Simpson, Michael Mounsey, Giles Pullen,

Trev Fisher, Martin Jones, Martin Robinson, Matthew Kelsey, Alex Wade.

Run - graphic -Text 1

Author: Billy Howard

If you’d like to help Wirral Hospice St John’s during the coronavirus pandemic crisis, some of the ways you can are outlined at http://www.wirralhospice.org/urgentappeal 

Thank You for always thinking of us.

Paul Parry (2)Dan BurnsStu GoslingMike HellerMark Leyland

Dave RavenDave RavenMatty RobertsAdam SimpsonMichael MounseyGiles Pullen

TrabsKnees in paddling Pool (ice added)Martin Dubai 2Matthew KelseyAlex Wade

Spotlight on Matty Pree – Boxing-off an eye-catching bike ride, within the current COVID 19 ‘allowable exercise’ rules #fun #cycling #hospiceheroes #fundraising #caring #support #thankyou #staysafe

MattyMatty Pree is already a hospice hero. He’s completed three other significant bike rides since 2015 to raise funds for Wirral Hospice St John’s and now he’s just completed in a nice way, his most ‘daring’ yet!

Yes, that’s because, on Saturday 25th April, Matty cycled 18.8 miles on a special route around Northwest Wirral to sensitively comply with the lockdown restrictions of our current COVID 19 crisis. (The ride only took him an hour, which is much less than his previous or future* planned cycling fundraisers for the hospice) 

He was in training for a 193 mile ride this summer for the hospice but the coronavirus has put paid to that (look out for the *From Chepstow to CH46 in 2021). 

So he’d been thinking about what he could do to help raise some funds, stay within government guidelines but, do something eye-catching to capture the imagination?

Well, what about riding around NW Wirral wearing only his BOXERS?

Yep! Tick! Brilliant! Well in Matt! And, it certainly caught people’s attention Can we call you ‘Cyclo-Matt’ (like Speedo Mick)? (He was also clear that he would also have to wear a safety helmet though!) 

Matty's dad Ronnie and darceyI asked Matty why he supports the hospice and he told me about his Dad, Ronnie, who passed away here in 2015 after living with lung cancer which metastasised into a brain tumour. (Ronnie is pictured here with Matty’s Daughter, Darcey) 

“The hospice was absolutely brilliant with my dad. The whole team were fantastic, second to none, and made Dad, our Mum, Mary, my brother, Phil, and I feel as at home and welcome as it was possible to be.

My dad was married to mum for 43 years, he’d been a taxi driver and loved his fishing, crown green bowls and he was a dab hand at Bridge.

He was also a doting grandad to my daughter Darcey, who was only two when he passed away, and my brother, Phil’s children, Jessica and Jake.

We loved him dearly and miss him deeply but he could not have asked for better compassionate care when his illness was at its most challenging.”

Matty's dad Ronnie and Mum MaryIt’s emotional for Matty to recall but he smiles when he starts to tell me about the other bike rides he’s done in his dad’s honour and to raise funds for the hospice. (Ronnie is pictured here with Matty’s Mum, Mary)

The first one was The Wild Wales challenge. Around 100 miles of cycling taking in 10,000 feet of climbs. Spectacular views which Matty only vaguely recalls as it was both exhilarating and exhausting!

In 2017 and with his friend, Chris Iveson, he took on The Way of The Roses, over two days from Morecambe to Bridlington, up-hill and down-dale, this time for a measly 175 Miles!

Then the Ride around North Wales, this time 143.5 miles in July 2018. It was the hottest day of the year and again some of the most beautiful scenery may have been missed as Matty powered on, taking in gallons of water.

Wow, well done sir! Along the way Matty’s rides, on his lonesome or with a pal, have raised a couple of thousand pounds for the hospice, for which he has every right to be very proud.

So, on Saturday 25th April, at 12 noon he set off, for an hour, down to his ‘boxies’, the way you do, and following a circuit which startsed at home in Moreton took in Upton, Arrowe Park, the ‘Barnston Blast’, Heswall, Thurstaston, West Kirby, and through Hoylake and back home, via Moreton town centre.

If you’d like to see the route Matty took and, maybe, give the fund a little boost check out Matty’s ‘Just Giving’ page at www.justgiving.com/fundraising/matthew-pree4

On finishing the circuit Matty said,

“I was a bit nervous going out in my pants at first, but after a few miles it was fine. Got lots of beeps and shouts of encouragement which was nice. One slight downside was I almost had a collision with a car, the first one since I was 19 and I was in my underpants. A car pulled out on me and I hit the side of the bonnet. I reacted quickly enough and it was a minor bump. Felt sorry for the lady driving she was a little shaken up. She apologised and offered to donate. All in all had a good ride out in my pants and the weather was great. I raised even more than I have for any of my rides, that must have been the choice of clothing! I am not sure I could cycle across Wales in a day in my boxers though.”

Matty and Son LucaNowadays he’s also got young son, Luca, alongside Darcey (now 7), looking up to their inspirational dad (pictured left).

Thank You Matty, absolutely superb!  Maybe next year’s 193 miler will top the lot!

However, when he does get around to that challenge, it’s going to be hard doing all of that distance in just his undies!!!

  Author: Billy Howard

If you’d like to take on a challenge during lockdown or even later in the year for Wirral Hospice St John’s, check out www.wirralhospice.org/getactive and as soon as you’re ready, get in touch with the Fundraising team on 0151-343-0778 or fundraising@wirralhospice.org and we’ll support you all the way!

Here’s Ronnie Pree, Matty’s dad, in his younger days, pictured below.

Matty's dad Ronnie in younger days

 

Spotlight on teenager, Finlay Costello-Smith, who is sporting a PHENOMENAL haircut for Wirral Hospice St John’s #fun #hospiceheroes #fundraising #caring #support #thankyou

Finlay 4 (2)A number of significant events recently came together for teenage Everton FC fan, Finlay Costello-Smith, to raise some funds to honour both of his late grandads, Patrick Costello and Bob Smith.

Both Patrick, in 2007, and Bob, in 2013, had lived their final days at Wirral Hospice St John’s. In 2013, Finlay’s mum, Mary, completed the BTR Liverpool half-marathon in their memory, just days after father-in-law, Bob had passed away. She raised a much appreciated £900 for the hospice.

Mary speaks glowingly of the care and support shown to both men at the hospice and how it holds a special place in all of their family’s hearts. Finlay adored his grandad Bob with whom he enjoyed really nice times as a younger child and although he was very young when grandad Patrick died, both men’s memories are kept well alive by the Costello-Smith’s and their close network of family and friends.

The month of March is significant as both men had died in that month and Finlay, now 14, had decided he wanted to do something to remember them.

Now, we all know that COVID-19 has closed schools around Wirral to all but a few children. Finlay is one of those ‘home-schooling’ and most markedly missing his mates (although we know modern technology can help us all to stay in touch, and Finlay is no different).

However, not being in school also gave him his chance to get a haircut that may have, in normal times, gone against school rules!

As we mentioned Finlay is Everton mad and one of his favourite players is Brazilian star, Richarlison. Finlay’s had a little bit of time to ‘gen’ up on a few of the Brazilian stars of the past and he’s been particularly drawn to their former national team superstar, at the time the world’s best player, Ronaldo* who was known by his countrymen as, O Fenómeno, The Phenomenon.

Finlay Ronaldo 2 (2)

(*Not to be confused with the contemporary great, Cristiano Ronaldo, a superstar himself in the modern era. Nowadays, the older Ronaldo (pictured here), has picked up a bit of a reputation for liking his food so he’s become known as ‘fat Ronaldo’ which clearly distinguishes him from his younger namesake).

Older readers might remember that in the 2002 Ronaldo had helped Brazil to win the World Cup Final (the third final he had played in and his second victory) scoring two goals in the match. They might also remember that he was sporting, what has become, an iconic hairstyle!

Ronaldo had had all of his hair shaved off, except for an ‘island’ at the front (also in the picture here) telling the press afterwards that it was to deflect them from focusing on a small injury he was carrying.

Finlay 3 (2)

So Finlay has taken the opportunity to have a severe ‘Ronaldo’ cut and to get family and friends to sponsor him, in order to raise funds for the hospice. Mum, Mary, picked up the shears on 29th March and now Finlay can emulate one of the greatest players in football history.

Finlay was also thrilled when his Just Giving page was picked up by his current idol, Richarlison, and featured on the player’s Instagram page.

So far Finlay has gathered a hair raising £700 (plus) via Just Giving and the page is open for a while longer if you click here

So we say to lifelong Evertonian, Finlay (in memory of his grandad’s and the specialist care his Mum remembers Wirral Hospice St John’s delivering to them both) the Everton FC motto, Nil Satis Nisi Optimum young man, meaning, nothing but the best!

Author: Billy Howard

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